Save the Date: May 4, 2014 Cystinosis Fun Run/Walk

 On May 4th we will hold the 8th Annual Cystinosis Fun Run/Walk in honor of Kacy Wyman. In the past we have had over 400 walkers and runners support the event and Kacy. We understand that there are many worthy causes and feel very fortunate that so many have chosen to support Kacy’s cause in the past – and appreciate you considering a financial contribution for our May 4th event.  All proceeds benefit Cystinosis Research Network. CRN is an all-volunteer, non-profit 501(c)(3) organization. The CRN Federal Tax ID# is 04-3323789.

Thanks to 37 pills a day, eye drops 8-10 times per day and 7 liters of water Kacy’s condition is stable – but we need a cure. Community supporters raised near $30,000 for the Cystinosis Research Network last year. These funds help with continued research projects to improve the quality of life for those dealing with Cystinosis and other rare diseases, and ultimately a cure! Your financial support is making a difference in Kacy’s life and all of the children enduring this rare disease called Cystinosis (Sis-ta-know-sis). Your support drives research and gives us hope that a cure will be found during Kacy’s lifetime. Thank you again for considering.

Checks should be made payable to:
Cystinosis Research Network